Saturday, April 25, 2009

Disability Rights Action Alert for California

Over 2000 people marched on California's state capitol yesterday protesting a second set of proposed cuts in services for people with disabilities and other special health care needs. Legislation is pending that would function to cut disability community-related services for a second time. I don't have the legislative contacts, but it seems that contacting the California Disability Community Action Network is a good place to start.

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About Me

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I'm the mom of a child with disabilities. Hannah's first neurologist said she might never develop beyond the level of a 2 month old infant, and there wasn't anything I could do about it. The brain damage was just too severe. Nine years later, she walks, uses a touchscreen computer and I've just been shown she can learn to construct sentences and do simple math with the right piece of technology. Along the way, I discovered I needed to teach myself what Hannah's rights to services really were. Learning about early intervention services led to reading about IDEA and then to EPSDT. I've been waiting for the Obama administration to realize the power and potential of EPSDT for the medical rights - including the right to stay at home with their families - of children with disabilities. The health reform people talk about long term care, and the disability people talk about education and employment, but nobody is talking about EPSDT. So I am.