Friday, December 3, 2010

NPR series starts today on "the new civil right" for people with disabilities

 Copied from an email forwarded to a group I belong to:

NPR will run stories that look at the new civil right, after the Olmstead decision, to get care at home.

The first story-about that right--runs today, Thursday, December 2nd (4:30 and 6:30 Eastern time) on All Things Considered on your NPR station. (Or you can find it by going to . You can listen to the radio story there. Also at our Web site, you'll find additional stories, a data base of every nursing home in America and the levels of independence in each one, a map t hat shows how much each state spends of its long-term care dollars on home and community based care, photos, and a chance for you to comment on the stories.

A second story runs tomorrow, looking at federal enforcement since the Olmstead decision. Also on All Things Considered, probably at the same time.

Next week, two more stories will run. The first-which has just been moved from Monday to Thursday-will run on Morning Edition, December 9th. It looks at the surprising group that is a growing percentage of the nursing home population: 31 to 64 year olds. This is built around the story of Michelle Fridley, at an ADAPT action in Washington in the spring.

That night on All Things Considered, we'll run a story on the Children's Freedom Initiative, an attempt to find alternatives to nursing homes for young people with disabilities.


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About Me

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I'm the mom of a child with disabilities. Hannah's first neurologist said she might never develop beyond the level of a 2 month old infant, and there wasn't anything I could do about it. The brain damage was just too severe. Nine years later, she walks, uses a touchscreen computer and I've just been shown she can learn to construct sentences and do simple math with the right piece of technology. Along the way, I discovered I needed to teach myself what Hannah's rights to services really were. Learning about early intervention services led to reading about IDEA and then to EPSDT. I've been waiting for the Obama administration to realize the power and potential of EPSDT for the medical rights - including the right to stay at home with their families - of children with disabilities. The health reform people talk about long term care, and the disability people talk about education and employment, but nobody is talking about EPSDT. So I am.